Virtual | 1- 5pm EDT
Watch the Videocast
Time | Presentation |
---|---|
1:00–1:10 |
Introductions and Meeting information Glen Nuckolls, National Institute of Neurological Disorders and Stroke (NINDS/NIH), MDCC Designated Federal Official (DFO) |
1:10–1:40 |
Chair Presentation Diana Bianchi, Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD/NIH), MDCC Chair |
1:40-1:50 |
Seeking input on the Fiscal Years 2025-2029 NIAMS Strategic Plan Lindsey Criswell, Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS/NIH) |
1:50-2:30 |
Meeting Reports Cure CMD 2022 Scientific and Family Conference Cardiac in Duchenne: Where we are and where we are going? |
2:30-2:45 | Break |
2:45-4:30 |
Innovative Outcome Measures for the Muscular Dystrophies Session Introduction Lived Experience Using Computer Vision to Quantify Movement Quantitative Video Assessment in Neuromuscular Conditions AI-enabled Shoe Insoles to Assess Walking Function in SMA and DMD |
4:30-4:40 | Update on Respiratory Complications of the Muscular Dystrophies, NOT-HL-22-025 Aruna Natarajan, National Heart, Lung and Blood Institute (NHLBI/NIH) |
4:40-4:50 | Update on Wellstone Muscular Dystrophy Research Centers Program, RFA-AR-23-001 Emily Carifi, NIAMS/NIH |
4:50 | Closing Remarks Diana Bianchi, NICHD/NIH |
5:00 | Adjourn |