December 8, 2023
Hybrid | 9- 4pm EST
Time | Presentation |
---|---|
9:00 – 9:15 |
Introductions and Meeting Information |
9:15 – 9:35 |
Chair Presentation |
9:35 – 9:45 |
Group Discussion |
9:45 – 10:05 |
New member nominee presentation |
10:05 – 10:50 |
Meeting/Conference Reports FSHD Society International Research Congress 2023 Myotonic Dystrophy Foundation Annual Conference |
10:50 – 11:00 | Break |
11:00 – 12:00 |
Meetings/Conference Reports (continued) AAV tox workshop update Myotonic Dystrophy Young Investigator Conference Limb-Girdle Muscular Dystrophy International Conference Parent Project Muscular Dystrophy Annual Conference and Specialty Meetings |
12:00 - 12:40 |
Recent Advances in Duchenne Muscular Dystrophy Session Introduction DMD Gene Therapy Trial Experience Group discussion |
12:40 – 1:15 | Lunch break |
1:15 – 2:35 |
Recent Advances in Duchenne Muscular Dystrophy (session continued) Progress on Newborn Screening for DMD Clinical Trial Simulation Tool for DMD C-Path's Duchenne Regulatory Science Consortium: Data-Driven Solutions to Enhance Drug Development Session Summary Group Discussion |
2:35 - 2:45 | Break |
2:45 – 3:30 |
Advocacy Group Strategic Plans (Continuation from the Spring 2023 MDCC meeting) Muscular Dystrophy Association Parent Project Muscular Dystrophy |
3:30 – 3:45 |
Update on Renewal of the MDCC Action Plan Group Discussion on Strategic Planning |
3:45 – 4:00 | |
4:00 | Adjourn |