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Tuesday, December 5, 2017


Upcoming MDCC Meeting

April 30, 2018

Neuroscience Center
Conference Room C/D
6001 Executive Blvd
Bethesda, Maryland 20892

Please note the October 4, 2017 meeting has been canceled.

Tuesday, December 5, 2017

Teleconference Only

or 1-650-479-3208 Access code: 622 734 375

Meeting Agenda


Welcome and Introductions
Stephen I. Katz, MDCC Chair

New ad hoc members:

  • Gustavo Dziewczpolski, Cure CMD
  • Grace Pavlath, MDA
  • Eugene Freund, CMS
  • Kimberly Richey, Dept of Education

Recognition of retiring public members:

  • Valerie Cwik, MDA
  • Peter Wald

Conflicts of interest policies and general meeting information
Glen Nuckolls, MDCC Executive Secretary


Meeting Reports

2017 Parent Project Muscular Dystrophy Connect Conference
Brian Denger, PPMD

2017 Myotonic Dystrophy Annual Conference
John Porter, MDF

2017 Meeting of the Wellstone Muscular Dystrophy Centers
Tom Cheever, NIAMS


MDCC Support for Action Plan Topics

Analysis of 2016 Funding Data
Glen Nuckolls, NINDS

Discussion of 2016 MDCC Funding Data
MDCC members and ad hoc members


Selection of MDCC Chair for 2018 & 2019

Call for nominations and vote by MDCC members
Glen Nuckolls


Meeting Adjourned

Meeting Summary

This Page Last Reviewed on November 29, 2017